Growing up with Prader-Willi syndrome

Prader-Willi syndrome is a complex and severe neurodevelopmental genetic disease with various stages of development. 

From the age of two, the eating behaviour of patients flips and they develop an increasing interest in food, followed by severe hyperphagia and a lack of satiety, often leading to morbid obesity. At all ages, dysfunctions with serious consequences are observed, leading to major treatment difficulties for patients, families and carers (learning, behavioural and social skills difficulties, endocrine problems and dysphagia).